Resources and Information - Grace for the Journey - By Elaine Sampson Grace for the Journey Book Cover

Resources and Information:

Fibromyalgia:

 

National Fibromyalgia Association and Fibromyalgia AWARE Magazine
(714) 921-0150
www.fmaware.org

Provides patient support and informational services to improve the quality of life for those with FM. They offer an online newsletter and publish FM AWARE magazine.

Fibromyalgia Network
(800) 853-2929
www.fmnetnews.com

They offer educational materials on fms and cfs.
Their newsletter includes information on research, treatment, coping techniques, conferences & interviews.

American Chronic Pain Association
(800) 533-3231
www.theacpa.org

Provides educational materials, information and peer support to those living with chronic pain. They also publish the quarterly newsletter CHRONICLE.

Chronic Fatigue Syndrome:

 

Chronic Fatigue and Immune Dysfunction Syndrome Association of America
(800) 442-3437
www.cfids.org

Offers information and resources to patients and professionals and provides patient advocacy. They’re also active in public policy. CFIDS Link is their e-newsletter.

Interstitial Cystitis:

 

Interstitial Cystitis Association
(800)HELP-ICA
www.ichelp.org

Provides educational materials and programs, research and treatment information and resources for patient support. Active in educating the public and physicians.

Interstitial Cystitis Network
(707) 538-9442
www.ic-network.com

Offers information and resources including a patient handbook, newsletter, library, support chats, message boards and medical updates.

Breast Cancer:

 

Y-ME National Breast Cancer Organization
(800) 221-2141
www.y-me.org

Dedicated to providing information, support and services to those touched by breast cancer. Y-ME offers a 24-hour hotline with interpreters in 150 languages.

Living Beyond Breast Cancer
(610) 645-4567
www.lbbc.org

Offers information and support including a newsletter, audios/CDs, interactive message boards, a Survivors’ helpline (888) 753-LBBC (5222), and conferences.

CancerCare
(800) 813-HOPE
www.cancercare.org

Provides free help to those living with cancer through education, information and referrals, counseling and financial assistance.

National Cancer Institute
(800)422-6237
www.cancer.gov

Provides information about many types of cancer and about clinical trials, research, treatment, prevention, screening, testing and coping.